Volume 17, Issue S8 e053895
DEMENTIA CARE PRACTICE (DESCRIPTIVE)
Free Access

Piloting an innovative knowledge translation and exchange (KTE) approach on educational resources for caregivers

Riley Malvern

Corresponding Author

Riley Malvern

Alzheimer Society of Canada, Toronto, ON, Canada

Correspondence

Riley Malvern, Alzheimer Society of Canada, Toronto, ON, Canada

Email: [email protected]

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Saskia Sivananthan

Saskia Sivananthan

Alzheimer Society of Canada, Toronto, ON, Canada

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Nathan Christie

Nathan Christie

Alzheimer Society of Canada, Toronto, ON, Canada

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First published: 31 December 2021

Abstract

Background

Knowledge translation and exchange (KTE) is about moving knowledge into practice, involving stakeholders in an ongoing iterative process. The Alzheimer Society of Canada (ASC) approaches KTE by emphasizing ongoing collaborations with our primary audiences: people with lived experience of dementia, healthcare providers, and researchers. Knowing that people have diverse learning styles and preferences for accessing information, ASC is diversifying the range of educational resources that are currently provided through a traditional medium (i.e., printed information sheets) to a multimedia range of KTE tools that can better meet the needs of our audiences. Beginning with a pilot project that explored the practical application of KTE to a key education resource, ASC has developed an operational process with the involvement of stakeholders to help our audiences access and benefit from the information they need in a manner that accommodates them.

Method

A resource for the KTE pilot project was chosen based on a data driven approach to assess need and impact (i.e., number of website views, downloads, printed resource orders and feedback from stakeholders). Using ASC’s KTE framework and the results of an environmental scan that identified KTE approaches used by other organizations, the team operationalized the KTE framework through a focus on four dimensions: 1) audiences, 2) information channels, 3) feasibility and 4) accessibility of the resource. Key stakeholders, including Alzheimer Society support staff and family caregivers, collaborated with ASC on the development of the tools through focus groups.

Result

An infographic and a small video series on practical communication tips for caregivers were created. These KTE tools will support caregivers in staying connected to the person living with dementia at all stages of the disease; as the information is broad and digestible, it can be used by other audiences, such as healthcare providers.

Conclusion

The KTE pilot project is a stepping-stone to establish a more integrative KTE approach to ASC’s educational resources. The process established through this project will ensure that those who turn to ASC for information can find reliable, up-to-date and evidence-based content through a variety of tools that are engaging, easy to understand and accessible.